Bring On Lemons

What's on my mind...is the incredible moral strength one must have to be a parent of a special needs child.  What my mind cannot even comprehend is the faith that a parent must have to be a parent of a terminal child. I remember being told that my first child had a rare condition (a defect if you will) that would have been fatal just a few years earlier. I remember the fear, anger, rage, love, and loneliness that flowed through my being during that early ultrasound. I recall with great clarity the discussions about options, procedures, doctors, outcomes, facilities, and mortality rates. I cannot imagine what it feels like to hear the words 'terminal' and/or 'fatal' in reference to your child. I think about it and my stomach physically hurts, my legs long to run far and fast, and tears well up in my eyes. My throat tenses and I know if I spoke the sounds would be guttural and unrecognizable. How do you hold things together when you can see the sign so clearly...